According to a support group, following the last week's federal budget announcement patients of an ultra rare disease have been snubbed.

As per the reports, the government has decided not to provide funding for the ultra rare hazardous condition called- Paroxysmal Nocturnal Haemoglobinuria (PNH).

Responding to the decision, the PNH Support Association of Australia said that the implementation of this decision would cost many lives not only in Australia but worldwide.

Experts claim that PNH, which is an ultra rare condition, has till now only affected just 70 Australians.

It is a condition in which the red blood cells explode, that causes numerous health problems, like the formation of blood clots, high blood pressure and failure of vital organs, like the brain, liver and kidneys.

Reports claim that the only treatment for this condition is Soliris (eculizumab). The treatment helps in reducing the destruction of red blood cells that are produced by a person's own immune system.

As told by the Royal Melbourne Hospital Director of the Department of Clinical Haematology and Bone Marrow Transplant Service, Professor Jeffrey Szer, that one in three people that suffer with PNH generally die within five years of diagnosis, in the absence of the access to a proper treatment.

Prof Szer also said that, "I see no reason for people living with a rare disease to be ignored, simply because there are so few of them".